What a going on

So, I've had gallstones ever since I was 12 years old. Over the years they have bothered me on and off. Years ago, a surgeon in Calgary told me to get it removed before it ruptures and can be life threatening.

And that is exactly what happened! February 17th, 2025 I strolled into the hospital in excruciating pain. Tests revealed my Gallbladder had ruptures I was then sent to another hospital about an hour away. After a few days in that hospital I developed two pleural effusions and a cardiac tamponade oh and I also went septic, I started on antibiotics, plasma and steroids. My health began to deteriorate and they brought me to the ICU, There Dr. Brazil performed a thoracentesis which is just a needly in your back that goes to your lung and drains the fluid. They pulled almost a litre of what looked like blood and I immediately could breath a bit better. I was then sent air ambulance to St. Johns. I was admitted to the cardiac ICU for two weeks. During this time I had consults with surgeons, cardiologists and hematologists. It really took a toll on my mental health as the steroids always give me so much anxiety and I was on high high doses. The other strange part was I don't full remember it all, at the time I went into the hospital I was suffering at home for days, I was dehydrated, malnourished and being septic can cause cognitive impairment as well. The whole time I was in the hospital my friends and family were growing increasingly worried (and rightly so.) In an effort to ease everyone's mind I would send little videos and pictures so show how "well" I was doing. However, it had the opposite effect as I was in fact not doing well at all and in the videos you can clearly see I am pale as a ghost, I can hardly breathe, my eyes are dropping and Im mixing up my words. Anyways, I got home and felt 600 years old. I was tired and contrary and I felt completely useless.  I turned 42 while I was in the hospital, I don't remember a whole lot about it seems like one day they just came in and my arm band said 42 instead of 41. The other thing about coming home is I saw how much my illness rocked my family. They were absolutely devastated and I feel like they are still traumatized and to be honest I am too. Any tiny tinge of pain in my stomach I spiral and think of the worst. At the moment I am back to work, happy to be back with my family and trying to manage my gallbladder at home. I eat small meals, try not to eat anything with too much fat, I avoid alcohol and take out. I worry that the next time this happens things will be worse. There was a low survival rate of what I went through and honestly I don't full know how to process it. There is something caused Post Sepsis Syndrome and I certainly feel that is what I am experiencing.  Keep me in your prayers. If you have any questions please let me know! 

The Audacity

So, let me start off this story by saying I have a valid, up to date accessibility parking pass for my vehicle. I got one when we moved to Calgary because the parking lot was huge and sometimes I would be taking myself to appointments. If anyone has been to the foothills hospital they know how sprawling that place can be. I remember bringing myself to an iron infusion and I almost didn't make it to the door. I thought about collapsing on the ground or calling for help but I just kept putting one foot in front of the other and made it to the door. Anyways, the point of my story is that I have many reasons why I use my accessibility parking pass including but not limited to, trying to avoid putting weight on my joints and muscles when I have a bleed, trying to avoid falling on the ice. So the other day I'm going into the pharmacy, as I walk in this old, dusty man comes up to me and says "Are you Handicapped?". I said excuse me? He yelled again, "Are you hadicapped."  I said are you a doctor? he said I don't have to be and repeated his catch phrase, so I said you are ignorant and rude and you need to get away from me. 

Which brings me to this PSA: If you see someone parking in any parking spot, mind your own business. If you are really concerned that they might be parking there illegally, walk over to their car and look on the dash board. The placard has to be placed on the dashboard, you will be able to see the date and make sure it is valid. If at this point you still just have to know if this person is parking illegally, go to the manager of the store, or contact the police. What you should never do is yell in someone's face "are you handicapped." Invisible illnesses are prevalent and someone's medical history is just none of your business. 

This particular incident happened where there were 3 accessibility spots available and the person accosting me did not have one of his own. So I'm not sure where he got the audacity to insert himself into the rules and regulations of a parking lot or the complete lack of self awareness to yell in someone's face in public. Anyways at the end of the day all I can do is take care of myself the best way I can, park where I'm legally allowed to park and ignore crusty old creeps.

-30-

Lurley Vondell Scott

So, I was gonna log in and tell you about how I had a hip bleed in December, January, February and March and how Im going for a CT scan on Tuesday. But quietly and peacefully my sweet grandmother, Lurley passed away on March 15th, 2023. 
She was 95 years old and I saw her just a few weeks ago when Zane and I went to Corner Brook for a little visit. 
I am so sad that she is gone. She was such a gentle soul. A very bright light in the world. I first met Mrs. Johnson ( she was a school teacher so we all called her Mrs. Johnson) I was only in grade 4. She treated like gold right from day one. Her and Stan had the cutest little house on York avenue and every special occasion we would all go over and have dinner together. She made the most delicious food and desserts. Some of my fondest memories are going over for Christmas dinner and then falling asleep on the couch to the sound of her, stan, charlie and mom chatting. They are all gone now and it feels kind of apocalyptic. Its weird being one of the last ones left. I feel so sad and my garage is collecting more and more boxes of things that I just can't bear to part with from them. I took a few days off last week to plan the funeral. I tried to use readings and hymns that I thought she would like. I have a few photos of her to display at the service and I tried to write her a nice obituary. Feels like such a small thing to do for a woman who has had such a huge impact on my life. Its a big task to try and honor the dead. Over the past few years it feels like a full time job with all the loss we have experienced. I will remember the good times and try to pass the kindness on to the next generation. 

and its Christmas all over again

Ah Christmas, a time to rest and relax and rejuvenate yourself for the hard winter ahead. This year my body decided to just break all the way down and I found myself being sick in one way or another from December 23rd to today, January 3rd. 

It all started with a urinary tract infection a few days before I was finished work. This infection progressed into a kidney infection and I found myself throwing up in a friends bathroom after a dinner party.

I had one day on December 27th where the infection was gone. However, the next day I had a hip bleed and went into emergency for a blood transfusion.

The icing on top of course was the sadness I felt about not having my mom around for Christmas. 

I am now back to work, tired, sad and bitter that Christmas break went so awry. However, there is not one damn thing I can do about it so Im just trying to grin and bear it. 

This poem really summed up how I have been feeling. 

The Music Crept By Us
from Flowers For Hitler by Leonard Cohen

I would like to remind
the management
that the drinks are watered
and the hat-check girl
has syphilis
and the band is composed
of former SS monsters
However since it is
New Year’s Eve
and I have lip cancer
I will place my
paper hat on my
concussion and dance

Grief

So, its been 5 months since my mom has passed away. I find myself being grateful that I had her as long as I did and I am thankful she isn't suffering anymore. However, when I think of her I often think of how sick she was. In my mind she was perfectly healthy until she turned about 60 and then she fell and broke her hip and then everything started to go down hill from there. Its scary, growing older. It must of been so scary for her lose her mobility bit by bit. I am ok most of the time, work as been a fantastic distraction but sometimes I'll come across something that reminds me of her and it cuts into my heart. 
Grief is a beast and I feel like I am still grieving the loss of my Father in March 2020. I am dreading the holidays. This weekend is Thanksgiving and when I lived in Calgary we always went to my fathers house. He would de bone a turkey and roll it in dressing and I would bring my famous hashbrown caserole. The past two years I made a turkey for all of us at Moms house. We would prop her up at the table and enjoy a meal together. This year it will just be Zane and I which is fine with me but sometimes when the day actually arrives you can't help but think about what you've lost. 
So I'll carry on this Thanksgiving without my parents, maybe I'll make a turkey dinner for Zane and I, maybe I'll bawl and just throw on a pizza. 

Camp Blast

So, Zane and I recently went to Hemophilia Camp here in Newfoundland. It was a wonderful weekend. I was anxious going into it not really knowing what to expect, still grieving, but everyone was so kind and welcoming I couldn't help but enjoy myself. 
The kids were also so sweet and thoughtful, making sure everyone was included in their games, taking turns with the Marshmallow roasting sticks. I've been involved with the Canadian Hemophilia Society since 2009 but never with the Newfound
land chapter. I have to say they are a great group of people and I am glad I went out of my comfort zone and went! I also accepted a position on the board as Communications Coordinator. 
When I got home from camp I found myself wondering why my parents didn't take me to camp when I was younger, and then I thought about how they aren't around anymore for me to ask them and it was a very strange feeling. It still shocks me sometimes how they are both gone and what my life looks like moving forward without them. 
Despite missing them I am happy and healthy for the moment and grateful for my weekend at camp!

Momma

So, its been 5 weeks without my Mom. Its still so hard to adjust to. When I make soup, I think oh I have to get a container now and bring some down to her. When I drive by her street I always think to pull in and have a visit. Things may never go back to normal but I am finding myself more grateful lately. Grateful for the time I did have with her, grateful for all the lessons she taught me and grateful for all of our friends and family who helped us through a terrible time. 

I had an iron infusion last week as my iron was down to single digits and Monday I had an ultrasound. It was the first medical things I ever had completed without my mom by my side or at least the ability to call and complain to her afterwards.

I am trying to focus on the future. I've been planning things for myself to look forward to while still trying to give myself space to grieve. 

True Grit

My precious mother passed away on Wednesday May 11th, 2022. I thought about that day many times. Ever since she first started exhibiting signs of what we would later discover was parkinsons disease. 
Mom was sick for many years. It was heartbreaking to see her faculties fail her one by one. When she first passed away I was grateful that her suffering had finally ended. I thought about how happy she would be up there with Charlie, her brothers and her mom and dad. Over the past few days I started collecting pictures for her wake. Thats when all the memories started flooding back and I found myself crying and wishing for another day with her. Mom was so many things, a great daughter, a loving sister, a caring friend and an amazing Momma. There are so many things I could say about her, she was vibrant, she was fun she was voted most popular in high school and was the captain of the cheer leaders. She was absolutely beautiful and people were drawn to her. To me, the most remarkable thing about my mother was her grit and determination. If she put something in her mind, that was it. It was gonna happen no matter what. 
A story that comes to mind is when I was 7 months old and I was diagnosed with Severe Factor 5 Hemophilia. The doctors told her I wouldn't live a normal life and they said I most likely wouldn't live to be 18 years old. Mom took me home and loved me and treated me like I was the best child she could of ever wished for. She gave me courage to live life. 
Another story that comes to mind is when I was 12 years old I had internal bleeding and I was very sick. I was flown air ambulance to the children's hospital. The doctors approached mom and tried to prepare her for the worst. The funny thing is mom wasn't having it. I was gonna survive and everything was gonna be fine and that's just the way it was going to be. She wouldn't even listen to anything else.
Now I only have 1 week of living without my mom and as hard as it has been I know she would want me to be happy and joyful. She would want me to live life the the fullest just like she did.

Bay St. George Sick Children's Foundation

So, it's the 25th Anniversary of the Bay St. George Sick Children's Foundation. This wonderful organization provides financial support to families who have to travel out of the area for medical care. This foundation was formed 25 years ago after a group of volunteers organized a fundraiser for me. 

The fundraiser was held on March 10th, 1997 at the Stephenville High School gym. They raised $4,100.

I was in the Janeway for almost a full year and my mom stayed at hostel across the street. 

I wasn't able to attend the event as I was still in the hospital but someone recorded it for me. I was overwhelmed then and I am now, 25 years later still blown away with the kindness and generosity of people in this area.

When I finally returned home from the Janeway people dropped off food and gifts and cards and some people told me how much they prayed for me. 

I will never forget the love my family and I received from this beautiful little town. 

If you can please donate to the Bay St. George Sick Children's Foundation. 

Upside Down

So life has changed so  much over the past year. This post will just seem like a list of terrible things and while I know its important to focus on the positives I just have to tell you about the part year just to get it out.

Ok it all started in June 2019 our dog Jade had a collapsed trachea we thought we were going to lose her and after three weeks or worrying about her and $2000 later she started to come around. 

In July 2019 our house was broken into while we were asleep. It was so terrible to wake up in the middle of the night and realize that your house has been broken into and some of your most prized possessions were stolen. 

In August 2019 I had to get a blood transfusion and Iron infusion for on going GI bleeding. 

In September Zane was admitted to the hospital with extreme back pain. 

October I was admitted for a blood transfusion and double balloon endoscopy to try to get to the root of the GI bleeding. 

November I was treated with plasma and Iron to try and bring my levels up from all the blood loss. 

December I was again treated with Plasma and Iron to bring my levels up.

In January my precious Nanny had a stroke and was admitted to the hospital. 

In February my angel Nanny passed away. 

In March my best friend was diagnosed with cancer and my father passed away unexpectedly. March also brought lots of cases of Covid, the world shut down and Zane and I were both laid of from our jobs of 13 and 4 years. 

So fast forward to now Zane and I moved to Newfoundland with our two amazing pups. We are surrounded by family and friends and overall much happier. 

Its been a crazy year and things continue to be unsure as Covid has has come to Newfoundland including a new Variant. I pray everyone is happy and healthy and able to find the silver linings! 

Je T'aime Papa

So, when I was in Kindergarten our project for Fathers Day was to make a T Shirt for our Dads. I drew a picture of my Dad and our teacher put it on a white T shirt to bring home. I don't completely remember making the shirt because I was so young but it meant a lot to my Dad.
Years later when I was in the Childrens Hospital my Dad flew down from Alberta to see me. When he walked through my room door he had on his Je T'aime Papa T Shirt on and we all laughed. It was so nice to have him around during such a difficult time and the fact that he hung on to that T Shirt for all those years was so touching.
My Dad passed away suddenly and unexpectedly on March 27th, 2020.
I now have the t shirt in my house and I will always cherish it. It reminds be of my father and his amazing sense of humor.

Love in the time of Covid-19

So, We are in the middle of a global pandemic. There are no way to fully comprehend the amount of pain and grief the world is experiencing right now.
In Canada, we are lucky to have free health care most people are social distancing and settling into a new normal.
In my own home I have been laid off work and Zane is blessed to be able to work from home.
From a chronic illness standpoint I am concerned that if i get a bleed, I will put more stress on an already maxed out health care system. I am also worried about having to go to the hospital in general and being exposed to potential illness there. I am also concerned because my Hemophilia Clinic is currently closed so I am unable to get in contact with anyone there. At the moment I am happy and healthy so I am praying it'll stay that way until this virus passes.
I will say when it comes to a epidemic, people with chronic illness might be the best equipped. For example, dealing with the loss of a job, over the years due to my illness I have been laid off, fired and made to feel so uncomfortable that I just quit. This is not something that is necessarily new for me. I have been where you are, wondering what my next move will be and thankfully have always found something even if it involved mixing paint or having  funeral for a rabbit (long story).
I've also spent a lot of time worrying about my health so if you are in that boat I am right there with you! There have been times in my life where I was sick, where I was near death and times where I thought maybe I just won't make it this time. Worrying is not helpful and it doesn't get you anywhere but sometimes its just impossible not to.
My only recommendation is to grin and bear it. I hate that advice but sometimes we just have to try and be positive until our situation changes.
In the meantime occupy your time with things you enjoy if you can like reading, watching a movie or cooking.
Since this whole thing has started most people have been scared but also so caring and kind. You will notice in the dark times there are always people reaching out asking if you need help or need to talk.
Lean on the people in your life and don't be afraid to ask for help. I learned a long time ago that it takes great strength to ask for help and most people are happy to do it.
In the meantime, if you need me I will be in my kitchen peeling, chopping and freezing bananas as I accidentally ordered 7 bunches of Bananas instead of just 7.
Take care of yourself, your loved ones and hang in there!

Nanny

I breaks my heart to say but my precious Nanny Priddle passed away yesterday. She was 91 and she passed away peacefully in her sleep with her family by her side.
When I first heard that Nanny was sick it broke my heart. I was scared and worried about her and I was worried about how the world would look for all of her family if she died.
However, when I got the call yesterday to say that she has passed I couldn't help but feel blessed and happy and at peace with everything.
You can't help but feel that was when you look back at how many people loved her and how she got to watch her little family grow and grow over the years.
Nanny was about 55 years old by the time I came around. I was a fat, little demanding baby and from the time I was born Nanny was a huge part of my life.
You see when you have a child with a chronic illness it takes a lot of people around to make it work.
Nanny treated me like any other of her grandkids, she didn't act fearful when she babysat me and she never seemed alarmed when she would come and visit me in the hospital. Even when there was probably great cause to be alarmed.
Nanny took me under he wing and seemed to know how to care for me even though my illness was new to the family and rare and severe.
When I would have a bleed she would wrap my ankles up in hot towels to ease my pain. When I couldn't sleep she would sing to me, these old lullabys that I had never heard of but they were so soothing.
We were blessed to all live in the same town and every Christmas, new years, Easter, thanksgiving and milestone birthdays we would all gather at nans house. Everyone was welcome and her and Poppy would cook these large meals. She loved hosting everyone and didn't mind if you brought a friend or neighbor.
The last time I saw Nanny was when we were all home for her 90th birthday. I thought she would live to be 100.
Nanny had a seemingly endless supply of love and care for people. She has 13 grandchildren and Im sure if you asked each one of them they would say they were her favorite! She had a way of making us all feel special just the way were are!
I am sad that I can't see her anymore and I am sad for all of my family as we all loved her so dearly but ultimately I am thankful that we got to have this fantastic woman in our lives for as long as we did.
As most of my family and friends know, Zane and I are in the process of adopting a child. It is a long drawn out, terrible process but thinking of my Nanny gives me strength to carry on and the confidence to know that even if I am 10% of the wife and mother and grandmother she was I'll be doing alright.

Patient Perspective Presentation

So, I had the honor of speaking to the group of nurses today at the South hospital here in Calgary. 

It was so nice to speak to them and share my crazy medical history.

Anyway I had to do a lot of writing and a lot of talking so I thought today I would just show you some pictures of my life along the way!

When it rains it pours

So, I left work on Friday a bit early because I was so sick with a cold. By the time I woke up on Saturday Zane and I were so sick. We were coughing and sneezing and achy it was awful.
Around Monday Zane started to feel better but I woke up with such a sore chest, i thought I slept funny or maybe it was just sore from all the coughing.
As the day wore on I could not take the pain. I took some painkillers but over time they became less and less effective.
I decided to go into the emergency room on Tuesday morning. I called my Hemophilia Clinic and they said the best thing to do would be go to Emergency.
So I'm writing this to try and convey how brutal having a illness can be its not the pain, its not getting an IV its not even the time wasted necessarily its the trying to convince doctors you need treatment.
Ok so when you walk into Foothills Emergency you have to line up to see Triage so I stood there for a while but the pain was just too bad so I sat in a chair just off to the side while I waited.
When it was my turn the nurse said why couldn't you just stand there? And I find that so strange like why does it matter to the operation of this hospital if I sit or stand? And it bothers you that much that you have to confront me about it? Anyways moving on, we see the emergency doctor and right away hes dismissing me. He orders an X ray, Ultrasound and EKG, they all come back normal which I knew they would because I have a bleed in the muscles of my chest wall I didn't think for a second my heart was involved.
They then park me in a wheelchair in the middle of the hallway for about two hours. The doctor comes over and says I am free to go so I say to him look I have a bleeding disorder I need plasma. He calls the Hematologist on call and they also say I can go home so he comes back and says I can leave. We explain to him that again I need blood I know what a bleed feels like this is a bleed.
Its so infuriating to have to fight for treatment every. single. time.
I eventually got my plasma and Zane and finally got to go home after 9 hours.
I use to have a treatment room in the Hemophilia Clinic where they could treat me but it no longer exists. The place for me is not in emergency but there is no where else for me to go.
Its very frustrating being rare and having this illness but having to fight for treatment on top of it is too much.
I am so thankful Zane was able to take the day off and come with me and fight with me. Sometimes it feels like im going crazy and its nice to have someone to hold onto in the chaos.

Miss Jade

So, Ive been on a roll lately with blogging so I thought I would tell you about June. I already wrote about the robbery in July. So here is what happened the month before.
We have had Jade our little Chiuaua mix for about 7 years. She was my brother in law Blazes dog, then when he moved out she was Della, Zanes moms dog. When Della moved into the hospice in Okotoks she asked that Jade be brought down here to Calgary to stay with us.
Poor little Jadey cried and cried the first few days she was with us. I honestly didn't think it was going to work out. Over time she grew very attached to Lily and eventually me and Zane. Now she is my girl. She waits for me at the door when I get in the shower and she follows me all around the house. One night she started coughing and even woke Zane and I up a few times. She had done this before and I had taken her to the vet about it. He said that she just has a small esophagus and not to worry about it so when it started again I assumed it was that or maybe kennel cough or something.
Zane and i decided to bring her to the vet hospital and by the time i got her in the door she was hyperventilating the nurse grabbed her out of my arms and took her in the back. I knew that couldn't be good but I was trying to stay positive.
A little while later the vet came out and took us to a private room. She said that Jade has a collapsed trachea and that we may have to put her down.
I tried to stay calm as I discussed the options with the vet but eventually I just broke down. I couldn't picture not having our little girl with us especially since she was only about 7 or 8 years old.
We decided we wanted to try and save her so the vet said they would put her on meds and oxygen and see if they could get her airway to open up more. They told us to come in the back and say goodbye.
We walked in the back of the hospital and saw our little Jadey in an incubator she was lying down and breathing very heavily. As soon as she saw me her tail started to wag and tried to get up.
I can't write much more about it because I will start to cry again and not be able to stop.
Anyway Zane and I said goodbye and went home and waited and waited for 12 hours!
At around 9 pm at night the Vet called and Said Jade was improving and we could take her home. It was honestly the happiest call i ever got. we picked her up and kept a close eye on her. She improved bit by bit and today she is doing great!
After everything that happened this summer with me being sick and everything I can honestly Jade being sick was the worst. I felt so helpless.
I am so happy to say she is doing well and we are curled up still watching Christmas movies, still sick with the flu but happy to be all together!

Aftermath

So, after the dust settled, Zane and I realized that they had stolen our TV, two laptops, my purse, Zane's wallet, his shoes and all of our keys. We were still in shock but had to quickly start the process of having our locks changed, contacting our insurance company and all of that fun stuff. 

Our family and friends were very supportive my Dad came over right away and helped me make notes and keep track of everything.

Our friends brought over food and were very supportive. 

My bff Cheryl even paid for our supper as the robbery took place two days before our wedding anniversary. She is always there when I need her and she continues to be my friend through this crazy journey of having a chronic illness even though sometimes I am not easy to be friends with.

Anyways, We were robbed on Thursday and then the following Monday I went for a Capsule Endoscopy because of course your illness can't stop even for a robbery, so my Dad took me to the hospital and I swallowed this really big camera shaped like a pill. I had to wear a recorder on my waist and my nurse said she could see blood in my stomach before I even left the office. 

This started a long and exhausting process of Gastrointestinal bleeding, plasma and IV iron. Lots of exhausted days, iv, weekly blood work and tests. 

I will write all about that next. For now I am fighting the flu so I am hopped up on Cough medicine watching Christmas movies and cuddling with my pups!

I hope if you are reading this you are safe and happy and healthy. Thank you for reading!

The not so friendly invasion

So, In July, two days before our wedding anniversary, Zane and I were sound asleep.
Earlier in the evening we had hail it woke me up and I came downstairs and Zane and I stood in our back doorway and stared out at the patio. We watched the hail come down and beat up my flowers. We talked for a bit and i went back to bed. At around 3 am we heard a loud crash sound, the dogs started to bark and we both woke up. I looked at my phone and got out of bed. I went back in the bedroom and told Zane I was going downstairs. When I came downstairs the front door was wide open and both dogs had ran out the door I was so confused a few seconds later Zane came down and said Ryanne, the TV is gone. That's when it hit me that we were robbed.
I went to the knife block and grabbed the biggest knife we have. And then I called 911.
The rest is a blur I mean its all a blur really.
I felt very violated and very scared. I felt like I was never going to sleep again.
Immediately after my biggest concern was Lily. We called out to her but she wouldn't come back and I worried the robbers would kick her or run her over or something I mean I still didn't fully know what was happening.
At this point we still didn't know if anyone was in the house as we have a basement and a detached garage. The police arrived 14 minutes later and I must say the 911 operator was so helpful.
Anyways the main thing is we are happy and healthy and recovering and that isn't even the worse thing that happened to us this summer! Our poor little Jade got sick in June and it was just awful. I'll write more about that later. That's enough drama for one post!

A series of unfortunate events

So I have had a nose bleed every day for the past seven days. Its not a big deal but its very annoying. At the moment I think I have an arm bleed. I think it happened last Sunday when I was trying to do some spring cleaning. I saw my family doctor about it on Wednesday and she sent me for an ultrasound. The ultrasound came back clear which is good in someways but bad because I am still in a lot of pain. I tried Celebrex to see if that would help and I tried cyclokapron and now I am on pain killers cause I just couldn't take the pain.

Zane and I are going to emergency today and I just pray that they infuse me without too much fuss. 

Thats honestly the worst part. Its not the pain, or missing work, or not sleeping or all the needles and the sitting in emergency for hours and hours. Its the dragging yourself to emergency in need of help and the doctors telling you to go home. So I am just hoping for a doctor that hooks me up!

Not a very exciting blog post but its the best I cant do for now. Keep me in your prayers please!

World Hemophilia Day 2019

Happy World Hemophilia Day to all my bleeder friends!
It's nice for us to have our own little day. Even though we have Hemophilia 24 hours a day, seven days a week.
Today while I was at work my tooth started to hurt, its one of my wisdom teeth that I can't get taken out because of my bleeding disorder so I just put up with it.
My knees hurt because I started going to the gym recently and a few times today when I got up to go to the printer I wondered if it was just muscle pain or if it would turn into a whole bleed situation.
Those are just some of the small things that swirl around in my head all day.
I like being at home with Zane and my dogs. I like spending time with my friends and family. The other day Zane and I went to the pool and we swam around in the lazy river and I find that in those little moments I forget about my illness, I forget about the pain and suffering and just enjoy myself.

Zane and I have been working towards something for the past two years actually it'll be three years in August. It is for sure the biggest thing we haven't taken on to date. Once I have all the details I will be blogging about it all day.
Because at the end of the day, Hemophilia or no Hemophilia we have to follow our dreams and have hope.

We have to hope for less bleeds, hope for adequate care for everyone in the world and hope for more days laughing and swimming in the lazy river.