So, today I went to the Hemophilia Clinic to get my hip looked at. It's been causing me some pain over the past few days and so I thought I would get it looked at just to make sure. They told me to rest it and ice it and if it's not better by tomorrow they recommended I come back and get treated with Octaplas. It's a fairly new product it is essentially a detergent treated plasma and it supposedly reduces the risk of transmitting blood borne pathogens and reduces the risk of reactions. Those are obviously huge improvements for me but again I've never taken it before so I'm still not sure how it will affect me.
You see I've been taking Fresh Frozen Plasma for 28 years so the thought of changing to something new all of a sudden is scary. Another down side is that its the same volume so it will still take a long time to infuse. So not only to I have the joy of hip pain but I also have the joy of having to read this 30 page article about Octaplas!
Keep us posted. I'd love to read the 30 page pamphlet on Octaplus. What pharma creates this product? Big hug from your factor V friends in Seattle, Washington USA.
ReplyDeleteCheryl
Sucks that the new med doesn't take less time to infuse. Hope there's other choices in the future!
ReplyDeleteAnd I hope you get some relief from the hip pain!
Cheryl,its made my OCTAPHARMA Thank you somuch Cheryl I would love to get your insight on this!
ReplyDeleteEdd, Thank you so much for reading! it means a lot to me!
Hi there, I was doing some research on Octaplas and I ended up here.
ReplyDeleteOctaplas is the safest plasma in the world. It reduces the chance of alergic reactions up to 94% beacuse it has no bloodcell's or particles in it. viruses are incactivated by the Soap treatment,other particles arr up to0,2microns are filtered out.
It is a licenced product. Every bag is identical. With FFP it divers per donor. Octaplas is pooled plasma from about 1300 donors. Each produced batch is about 1000 bags.
It is widely used in Europe. There are scandinavian countries that no loner use FFF but only Octaplas because its proven safety and results for the patients.
I hope this helps to take away some of your fears. Ask your doctor about it he can supply you with all the data. www.Octapharma.com will explane a lot.
Good luck and stay strong!
Thank you so much for your response! I really appreciate it. I will check out that website and see what they have to say about it. It sounds safe I am just worried about trying new things.
ReplyDelete