A blog all about raising awareness for Women with Bleeding disorders.
I am a severe factor 5 Hemophiliac living in Calgary, Alberta, Canada and this is a blog about my life!
I wanted to ask you what the psoas bleed was like? Before I knew I had hemophilia (mild factor VIII 22%) I signed up for track and field. The night after the first practice (we ran up and down the concrete bleacher seats several times) I woke up with what felt like a charlie horse in my hip but by the morning I could not move my leg without extreme pain. Other people could move my leg though. The hospital thought it was viral sacroiliitis and gave me some anti-inflamatories and sent me home. I was a week or two in bed and then another few weeks on crutches before I would walk on that leg again. Is this at all like what you went through? Could I have been having a bleed?
I am not a medical professional so i could be totally wrong but it sounds to me like a bleed. That is exactly what my psoas bleed felt like. I am so sorry to hear that went through that. I am surprised at how good it healed up without factor. How does it feel now.?
thank you for the reply! i really appreciate your perspective. We are both anomalies of anomalies so there's not much medical literature on the kinds of things female hemophilics go through. I'm finally undergoing therapy to get my psoas to release its spasm. Ever since the injury my leg has felt shorter and I've had chronic tension in that leg and it's led to back neck shoulder and arm problems. But that's all getting better now that I understand the origin of the problem. I'm pretty sure I healed pretty well but I won't be totally sure until the therapy is complete. I don't really know what the side effects are of a bleed in a location like that.
As always, this is beautiful and informative. The insight that you provide into your illness is extrememly helpful to young women trying to figure out how to navigate through life with an illness. Your bravery is inspiring!
I'm so glad you are getting treatment! please keep me posted on how it is going. The side effects of bleeds in general are pain and swelling. If left untreated it can lead to muscle wasting and nerve damage. Thank you so much for reading and please feel free to write me anytime and ask me anything! take care!! xoxo