Sunday, July 6, 2014


So, I've been having stomach pain during the past couple days. An ultrasound showed that everything looks good, kidneys, ovaries and bladder. but now I am here in a lot of pain so I'm thinking maybe its arthritis I have had many really big bleeds in my hips so that could be it. I will go to the clinic on Monday and investigate further.
In other news Zane and I have purchased our very first home! We are very excited. I just love everything about it and I find myself staying up at night thinking about the colour scheme for each room. 
However, Zane and I have a very sick family member at the moment and it seems like no matter what we do its impossible to not worry about her and think of her every day. 
This blog is about my illness so I won't go on anymore about her illness but I can tell you our hearts are breaking.
If you don't have your health you really don't have anything. If anyone is reading this please take care of yourself as much as you can and enjoy your life every minute of it. 


  1. Hi Ryanne, I am a symptomatic hemophilia carrier for factor 9. My factor levels make me a mild hemophiliac, but I seem to bleed more often than a mild hemophiliac would. I'm glad I found your blog. Thank you for sharing your story. You seem like a strong and inspirational person. You can read a little about my experience here:

    1. thank you so much for taking the time to write! I'm so glad we were able to connect!

  2. Ryanne. I stumbled on your blog a while ago and it is amazing. You are awesome. One of my favorite posts is 'Hope'. I want you to start crossing those things off that to do list. I am in awe of your bravery about putting this blog together and being so open.
    I am the mom of a Severe A Hemo and found out I was a carrier when he was born. I have learned so much about the bleeding disorders in 3 short years. I had no idea women were struggling to be diagnosed correctly and finding any movement on medical advancement.
    I was on a panel at an event here in Los Angeles at the beginning of the year and say a real need for MORE connection. From the overwhelming response I received when I mentioned some ways to give back I decided to do something. I recently started a podcast for the bleeding disorder community. (This is terrifying for me, but the people and stories we have so far are going to help, I just know it!) It is an audio chat of people in the community and their story. You have a powerful one and I was wondering if you would like to come on and tell it to us. If you want to listen to some episodes, you can head over to and click the podcast button. I am still developing the site, so bear with me :) ITunes is reviewing the episodes and we hope to be in the iTunes library this week. So exciting.
    The only reason I have the courage to do things like this is because of the bloggers like you and Lovee and Cazandra.
    Please let me know if you would be interested and I will email you more details.You can find me on facebook and twitter also.
    You are such a beautiful person and I hope you get everything you want out of this life!
    All the best,
    Matti Vann

    1. Hello Matti I would very much like to get involved! please let me know how i can help! you can reach me at

  3. My name is Sabrina Mann and I am going into my senior year at Summerfield Waldorf High School in Sonoma County California. During this year, students complete a Thesis Project, in which each student researches and writes a paper on a topic of interest. I want my topic to be personal and well as scientific. For my project I will compile stories from people who have dealt with or are currently dealing or living with hemophilia.

    I want to publish these stories as a way to educate my community on hemophilia and its history. I am a hemophilia carrier and come from a family with uncles and cousins that have and still live with severe type A hemophilia. I chose this project because until now hemophilia has never really touched my life and I never knew much about it. I realized that if I, someone who carries the gene for hemophilia, doesn’t know much, how does the rest of my community? Today in the U.S. there are 20,000 people with Hemophilia, while this might be a small number compared to the total U.S. population, for those affected this is a huge number. I believe that hemophilia is an important issue that needs to be better understood and I am hoping that with the inclusion of your story I can make a difference to help create further awareness. Please let me know if you are interested in sharing your story or if you have any questions.