A blog all about raising awareness for Women with Bleeding disorders.
I am a severe factor 5 Hemophiliac living in Calgary, Alberta, Canada and this is a blog about my life!
how rare is the hemophillia factor 5? I have factor 9 deficiency...
There are only 150 cases reported world wide
Hi Ryanne, so sorry to hear about this, it is terrible when you are in pain and can’t get the help you need. Having grown up in a time before factor or plasma was available to treat my bleeds gave me many opportunities to hear the doctor say, “Here’s some ice, now go home you’ll be better in a few days.” I don’t know much about Factor 5 but doctors should not dismiss a person just because they don’t know what to do. You need to do some research on your own and find a doctor that is willing to help you. That doctor is out there, all you need to do is find him/her.It took me 2 years and visiting 6 doctors before I found the one that was willing to take on my broken leg. Don’t give up!!Ray Perreaulthttp://blog.raymondperreault.com
I have to agree-- I absolutely hate feeling like my doctors are implying that I'm not telling the truth. All I can chalk it up to is that I'm not the cookie cutter case. No, I don't get anemic but that doesn't discount the fact that I'm practically hemorrhaging. It's horrible to be second guesses by someone who is such a big piece in the puzzle that is our bleeding disorders. Thanks for sharing! It's good to know I'm not the only one who has experienced this.