Sunday, April 26, 2015

Love and hard times

So, I thought I would take a minute to write about my illnesses that have been going on for the past two months. 
It all started with me feeling tired, I thought maybe I was depressed or something but I just felt tired all the time and then eventually it go so bad that I couldn't walk to the top of the stair es without being completely out of breath. 
I went to my family doctor, I went to my hemophilia clinic, I went to emergency, I couldn't get anyone to do anything about my illness until eventually my father came to get me and took me to emergency.
My hemoglobin was 55, I had pneumonia, I had swollen lymph nodes in my chest and I was bleeding internally so needless to say I was in rough shape.
I was treated with about 6 unit of red blood cells and 10 units of Octaplasma. 
My doctors think that I had a bleed that caused my levels to drop and then when we treated it it disappeared.
Just to be sure they did every test I've ever heard of a endoscopy, bronoscopy, colonoscopy, EKG, Chest X ray, ultrasound and two CT scans. 
Everything came back normal except the CT Scan, they think I have a lung disease called sarcoidosis which I will explain if I actually get officially diagnosed with it. 
I see a lung specialist in May to find. 
Anyways, I really wanted to blog about this because in 32 years I've never had a bleed without pain so I'm still confused about how I had such a huge bleed (enough to drop my hemoglobin 5 points a day) without noticing blood anywhere and no pain.
I find this very scary to think you could be bleeding and not even know it? 
The other scary part was the biopsy. I could tell by my doctors face after my CT scan that things weren't right and thats when they said they wanted to do a biopsy because my symptoms were consistent with lymphoma. 
So overall it was a hellish week, not to mention the terrible reaction I had to propophol, the nausea from the morphine and the joy of drinking more than 8 litres of contrast dye. 
The worst part of the week was the fact that it kept me away from seeing Della but I know she understood. She was always so understanding and respectful of my illness. She never wanted me to push myself or stress about anything especially her, she wanted me to be happy and healthy.

The following are some photos of my adventure.
1. My oxygen mask thing
2. My red blood cell transfusion
3. My iron transfusion its black! who knew?
4. A moment of rest in the busy emergency room
5. Me with oxygen 

1 comment:

  1. Ryanne, Sherree here. I'm in Calgary. Trying to get you on the phone. No anwer please call me. At 403-256-3387 thankyou