18 years and counting

So, today marks 18 years since I attended my very first event with the Canadian Hemophilia Society, now Bleeding Disorders Canada. We went to a retreat somewhere in Ontario, where we had education sessions and formed the very first National Youth Committee. 

I have to mention Helene Bourgaize, who organized those meetings and gave us the education, guidance, and confidence we needed as young people who were just beginning to learn how to create programs, run meetings, and find our voices within our community. Looking back now, I realize just how important those early experiences were.

I was a member of the committee for two years before becoming the co-chair. Some of the members of that committee have gone on to remain involved with the society for many years, holding positions such as President, Vice President, Chapter Presidents, and so much more. It is pretty amazing to look back and see where so many of us ended up.

My current role is with the Newfoundland Chapter of Bleeding Disorders Canada. It has been so nice to come back to Newfoundland and be welcomed not only by my family, but by my hemophilia family as well. I am currently the Communications Coordinator.

My favourite part about the NL Chapter is Camp Blast. It has been one of the most fun and rewarding experiences of my 18 years of volunteer work. There is something really special about watching young people with bleeding disorders find friendship, confidence, and a sense of belonging at camp.

And then there is Amelia.

On the board with me is an incredible young woman named Amelia. She is kind, enthusiastic, and intelligent. She is currently working on the Youth Committee Board, trying to get youth across the country involved. It is a noble and incredibly important cause, and I can't imagine anyone better to accomplish this than our Amelia.

When I look back at photos from when I was just 25, I can't help but smile at all the faces, friendships, and memories. So much has changed in 18 years, but the reason I stayed involved has never really changed. This community has given me friendships, purpose, and a place where I have always felt understood.

And while it is wonderful to look back at where we started, what makes me even more excited is looking forward. Knowing that we have incredible young people like Amelia coming up behind us, finding their voices and taking up the cause, makes me feel confident that the future of our community is in very good hands.

18 years later, I am still here. Still volunteering. Still advocating. Still making friends. And still incredibly grateful to be part of this community.