A blog all about raising awareness for Women with Bleeding disorders.
I am a severe factor 5 Hemophiliac living in Calgary, Alberta, Canada and this is a blog about my life!
yes. nobody can assure 100% protection as long as the product is made from blood. But in future, I expect genetically altered micro-organisms to produce the clotting proteins and extract recombinant factor from them, stopping the blood-borne diseases.
Yes That is my hope as well! I have severe factor 5 so there is no recombinant factor for my specific factor but I am hoping someday all bleeding disorders will have a recombinant product!!
so, what medicine do you use? any alternatives?
I take Fresh Frozen Plasma normally about 4 units for a bleed.
oh... can't any alternate factor concentrate be used for factor 5? like Factor 7 can be used for Factor 8 inhibitors.
no there is no concentrate or recombinant factor for factor 5!! Sadly I stil have to use plasma!!
plasma is effective enough?
Yes! its the only the only treatment I've ever used! there are no drug companies that have developed a factor 5 product!