Travel woes

The joys of having a rare condition just do not stop. Today I looked into my insurance with my work and they do not cover pre existing conditions. I know that it is not the end of the world and I will simply buy it some place else but I have to say I am so sick of having to take extra steps and precautions for every move I make. The world is really not set up for anyone with any sort of special need or anything out of the ordinary. I try my best to not get discouraged but sometimes I just want to scream. I know I am not the only one who needs special accommodations. What do these people do? How do they get through life? I know I find it hard enough I can't imagine having any other obstacles. I think when you have a chronic illness it is important to keep a positive attitude, but sometimes I don't want to have a positive attitude I want to take all the obstacles in my life and kick them over! But as anyone with a chronic illness will know, you can't fight it. You can play hopscotch with your friends all afternoon and try to pretend you're not in pain but eventually whether you like it or not you have to give in and go to the hospital. I use to have must more courage when I was a kid. Now I've gotten really good at convincing myself that I'm ok with missing out on things. For example "I can't wait to go to that party on Friday." "I'm too sick to go to the party." "I didn't want to go to the party anyway." It might not be true but honestly what are you going to do about it? There is no point in getting upset about it. All you can do it smile, make yourself some popcorn, turn on a movie and get some rest!