A blog all about raising awareness for Women with Bleeding disorders.
I am a severe factor 5 Hemophiliac living in Calgary, Alberta, Canada and this is a blog about my life!
I have been following your posts and I like your blog. I think that you are a good writer. I hear you about the insurance thing because I worry too. I have often thought that I was one pink slip away from disaster. My factor is expensive and I depend on insurance. I did a series about it on my blog called “Programs To Keep Your Platelets Sticky”. You can find it at: http://blog.raymondperreault.comBTW, congratulation on your recent nuptials, my best to you and your "one and only". Keep writing.Ray Perreault
Ray! thank you so much for writing to me! I am in the process of reading your book right now. I will look into the insurance information on your blog. Thank you so much!Ryanne xo
The opposite was true of me; when I was young I was more timid and reticent to do things, and more prone to accept the disappointment that bleeds would bring. I lost count over the years how many things I've missed out on because I'm in pain. However, the older I get, the less I am willing to accept this as the be-all-end-all. Sometimes I need special accommodations, and I'll push the envelope to find out exactly what can be done to make sure I don't miss out on things. The way I see it, I missed out on way too much when I was young, and I'd be damned to miss out on things now just because I'm afraid of having a bleed. Life is too short to miss out.I understand your frustration completely about pre-existing conditions. It's something that I've had to deal with my whole life. There have been years where I haven't had any, and have had to wait in line for social insurance to make sure I could get treatments. With the help of my treatment center, I found a program that ensures my coverage is contiguous so that I need not worry about a lapse in coverage (in the United States, if there's a 6 month lapse in health coverage, you start the pre-exisiting condition clock all over again). I don't know what the policy is in AB, but it might be worth a phone call to your center to see what programs may be available. May not help this time, but it's good info for the future.Remember though, sometimes it's okay to kick the obstacles, just don't kick too hard! ;)