Thursday, January 14, 2016

New Year, New Fear

So, as a severe factor 5 hemophiliac I rely heavily on the blood system to keep me alive. There are no other treatments available for factor 5 so I receive Octaplasma, which is a detergent treated plasma and fresh frozen plasma.
If you get a chance read this article,
I am not 100% sure what it i all about but it was posted by a member of the Hemophilia community.
Basically the article is talking about a new virus they discovered in human blood.
They are not sure if the virus causes disease or not but it is very scary to me.
Just the thought of something potentially being in the blood system scare me and should scare everyone as anyone with blood in their veins could possibly need a transfusion at some point in their lives.
I like knowing whats going on in the bleeding disorder world but without all of the information I am just finding myself a little scared.
The last time I was freaked out about the blood system was when I was in high school, I was told about how hemophiliacs contracted HIV and Hep C during the 1980's.
In response to this I refused to get a blood transfusion for a month or so. I had a bleed in my hip and left untreated the blood ate away and my muscles until I just had one little tiny skinny leg and a limp and I was in so much pain.
I was eventually sent to St. John's and treated there for a few weeks.
That was a terrible time in my life but I certainly learned my lesson. Not being treated is not an option.
Anyways, just thought I would share this article would love to get your thoughts on it!

1 comment:

  1. That is scary! I just finished getting all my hep shots and now there's something new?