Thursday, February 11, 2010

Wine and Cheese and Hemophilia

Tonight is a big night! We are having a wine and cheese event at the Art Gallery of Calgary for our Volunteer Appreciation night for the Canadian Hemophilia Society- Calgary Chapter.

I am the Vice President of the Calgary board and we have spent lots of time planning for it!

Events like these are very important to me. I grew up in a town of 10,000 people. There was only one other boy in our community that I knew of that had Hemophilia. He was a lot younger than me and he was a boy, so I didn't really have a connection with him until now.

My family had no information about hemophilia and it wasn't until I was about 13 years old that I even heard of another female with Hemophilia.

Now, Hemophilia is a huge part of my life, it always was but it seems like I've only admitted to myself in the last two years or so. I get involved with the Hemophilia Society as much as I can, I am a youth representative for Alberta and I am on various other committees.

Last year at a women's conference here in Calgary I finally got to meet a lady with Factor 5 Hemophilia like me. It was such a wonderful experience to meet someone that knew EXACTLY what it was like to live with this condition. It was overwhelming and exciting all at the same time.

Tonight, I get to spend the whole evening with Hemophiliacs and talk and chat about life. I also get to drink delicious wine and desserts! Life doesn't get any better than this!

1 comment:

  1. Hey Ryanne, it's Silvana. LOVE THIS BLOG SO MUCH, you have no idea. I was thinking of starting a new one myself. Would it be okay for me to link to you?