Tuesday, March 22, 2011

Greetings from India!

So, as I have mentioned before I have met lots of Hemophiliac friends from India! They are wonderful friends and we have been talking a lot about how we can improve the quality of life those living with Hemophilia. The following is from the Youth Group in India! If you would like to help out please let me know!

When you are young, you have lots of ideas and a free spirit and loads of enthusiasm to change the world. You not only understand the problems around you but you have innovative and new solutions for most of them. Someone just needs to guide you and nurture you to be the MAN/WOMAN you want to be.

National Hemophilia Youth Forum of India (NHYFI), a youth wing of Hemophilia Federation of India (HFI), was formed in 2004 as a platform for young haemophilic voices in India to be heard. HFI powered NHYFI with an organizational structure, manual, roadmap and a constitution to function. NHYFI now serves as a playground for the young budding leaders to get involved. Hundreds of youth across India today meet to help improve the quality of living for those living with Haemophilia.

NHYFI is built across a shared vision, value system and culture that bind the Haemophiliac youth with friendship and the feeling of belonging.

The broad goals of NHYFI are:

• Create Education and Employment opportunities for the youth across India.

• Create a self sustaining support chain for the youth.

• Build next generation leaders of the HFI.

The founding belief of NHYFI is that by empowering and guiding the Hemophilia youth today we are building a stronger and self sustainable Hemophilia community for tomorrow. HFI in sync with NHYFI arranges many activities to address youth issues such as education, marriage counselling and hemophilia care in general. In the last six years many young men and women of India have been benefited from these efforts. Many more shall be reached soon. We have a lot of obstacles in front of us but our spirit to win them over is greater.


  1. It definitely is wonderful that there are resources for youth in India (and adults) with hemophilia. I agree that there are a lot of obstacles world-wide for the medicine and treatment of hemophilia, and hopefully we can overcome those.

    Thanks for sharing this information!

    --Dr. Everett Lovrien

  2. Thank you so much for your comments and for reading! if you have something you would like me to post please feel free to contact me!

  3. Thanks... Your support is needed in making Hemophilia awareness to spread all around globe

    please note my blog at youngvoicesonhemophilia.blogspot.com