A blog all about raising awareness for Women with Bleeding disorders.
I am a severe factor 5 Hemophiliac living in Calgary, Alberta, Canada and this is a blog about my life!
Ryanne, why does it take so long? Do you always go to the same ER? You would think by now they would know you and have a plan of care. Also, we usually transfuse each unit of FFP over 15mins, how many do you usually receive for a bleed?
Teri,Wow! that is a super fast rate wow! how big are your units mine are typically 350-500ml. Also, I have a Hemophilia Treatment centre that I normally go to but they are only open MOnday to Friday! Do you go to the hospital to infuse a well!
I did it!!!!! I finally figured out how to sign in.
.......long time follower, first time comment. :) I have no idea what you go through. My best friend's newborn daughter died in May of Factor 10, and my friend and her middle daughter turned out to both be deficient as well. The only bleed they've had to deal with was Isabelle's fatal brain bleed, so I haven't witnessed much firsthand as far as infusions and bleeds--but while reading this post I had the thought, "wow, that sucks, can't you just put it off until after the party?" and then I thought... "seriously? Did you just think that? You can't honestly think that!!" and it occurred to me just how lucky I am to be so naive. Good luck, and I'm thinking about you.
Julia! Thank you so much for your comment! I am so sad to hear about your friends loss that is horrific! You are very lucky to be healthy but it si great that you take an interest in the conditions of others!You are sweet. Thank you for taking the time to write!!
Ryanne,Why do things like this always happen on weekends? So did you spend Saturday in the ER?I wish I could tell you it gets easier when you get older, but that is not my experience. The older I get, the less I seem to be able to determine if pain is from a muscle spasm, arthritis or a bleed. I guess that is a small price to pay for living to be fibrinogen free and 60+.Linda
Rynanne?? How are you doing?? Did you have the bleed?? Did u take the infusion??
Thank you for your wisdom! It's always hard to tell if its a bleed or not. I am sad to read that you are still having problems into your 60s but I am happy to hear you made it that far!!